Update
*****************
Poor baby Peightynn, Stacey and I made the trip to Doernbechers Children Hospital
Momma has a DNA gene, the dad (who isn't in the picture) has this same DNA
the combination is lethal. She is one in 50,000 who has this.
There is only one Dr in the US that has studied this problem.
It will be a couple of weeks of waiting before we find out
exactly what catagory she is in. She has a chance of living
a year or maybe 3. She is almost 6 mo.
Amber, Peightynns mommie is only 27. She has the
support of her 2 sisters and a few friends. It's really rough right now.
Thank you for your wonderful comments.
12 comments:
I am so sorry to hear this news Laurie :( Prayers all around
OH such sad news to hear.. Please pass on to them that I will keep them all in my Prayers,, God Bless them all... I will Pray for good news on the results of her test...
Hugs;
Alaura
That is so awful, I cannot even imagine having a child so sick. My prayers are with your friend.
Lisa
Oh, Laurie -- Sweetie, know that you and the others are in our hearts. So hard trying to understand ... and sometimes we never do know why little ones suffer so. We have to trust that God is in control and He will give us peace.
Sending a heartfelt hug ...
Betty
Little Miss,
I will continue to keep Mum and daughter in my thoughts. And you dear friend along with your incredibly compassionate, caring daughter will also remain in my thoughts. You and Stacy might not think you are doing all you can but I assure you, you are. Right now the most helpful thing for Mum and baby is to know you are there, so she can draw strength from you!!!
Pattie ;)
Mazatlan Mx.
Oh my gosh...if there is anything I can do? (I don't live too far away) I will pray for them daily.
So sorry,
Carrie
There is always hope. New cures are found every day.
Sending hug to you all.
Sad...but there's always the chance for a Christmas miracle! LOL!
I'm so sorry to hear this, I will keep them in my prayers!
Praying for this sweet baby and mommy. I've seen babies who were only supposed to live a short time live long lives. Holding them up in prayer for a miracle! ~Adrienne~
I will be praying for them too. Please keep us posted.
Blessings,
Gigi
Dear Laurie, I will pray for a miracle for them...you have had quite a year, haven't you! May God bless you all.
Love,
Marilyn
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